7 Black Celebrities You May Not Know Have Sickle Cell Anemia

Larenz Tate
Actor Larenz Tate, who is best known for his role as O-Dog in the 1993 film Menace II Society, has sickle cell anemia. His other films include Dead Presidents, Love Jones, A Man Apart, Waist Deep, Biker Boyz and Ray. “It’s really important to know if you carry the disease,” Tate says. He stresses the importance of screening since many do not know if they have sickle cell anemia, a hereditary blood disorder.
Tiki Barber

Tiki Barber
Tiki Barber is a former NFL running back who played for the New York Giants for 10 seasons. Barber has launched a national health education campaign, Be Sickle Smart, to raise more awareness about the disease. The football player also gives advice on how to manage the disease.
Miles Davis
Legendary jazz musician Miles Davis suffered from sickle cell anemia. He was reportedly plagued by bad health, including diabetes, hip problems related to sickle cell anemia and two bouts of drug addictions.
Paul Williams
Paul Williams
Paul Williams, an original member of the legendary R&B group The Temptations, suffered from sickle cell anemia, and his health issues had a negative effect on his music career. In too much pain at times to perform, he would often self-medicate with alcohol.
Image result for Paul Williams
Georgeanna Tillman Gordon

 Georgeanna Marie Tillman Gordon

Singer Georgeanna Tillman Gordon, of the Motown girl group The Marvelettes, was diagnosed with sickle cell anemia during childhood. She died from the disease in 1980.
Tionne ‘T- Boz’ Watkins

 tboz

Singer T-Boz of the popular group TLC has sickle cell anemia and has served as the spokesperson for the Sickle Cell Disease Association in the United States.
Prodigy

 Prodigy

According to rapper Prodigy, of the rap duo Mobb Deep: “I was diagnosed with sickle cell when I was 3 months old. I have the worst type of sickle cell … the ‘SS’ type. If I don’t take care of myself and do the right things, I will experience a severely painful sickle cell crisis; all my joints hurt; it’s a bad scene. Before I really knew how to take care of myself, I was in and out of the hospital … they had me on morphine for pain, IVs in my arm, couldn’t get comfortable for days at a time … it was really hard on my body.”

Trailblazer: The First Women To Be Cured Of Sickle Cell Disease

ieshathomas

Chicagoan Ieshea Thomas is the first Midwest patient to receive a successful stem cell transplant to cure her sickle cell disease without chemotherapy in preparation for the transplant.

University of Illinois Hospital & Health Sciences System physicians performed the procedure using medication to suppress her immune system and one small dose of total body radiation right before the transplant.
The transplant technique is relatively uncommon and is a much more tolerable treatment for patients with aggressive sickle cell disease who often have underlying organ disease and other complications, says Dr. Damiano Rondelli, professor of medicine at UIC, who performed Thomas’s transplant.
The procedure initially allows a patient’s own bone marrow to coexist with that of the donor. Since the patient’s bone marrow is not completely destroyed by chemotherapy or radiation prior to transplant, part of the immune defense survives, lessening the risk of infection. The goal is for the transplanted stem cells to gradually take over the bone marrow’s role to produce red blood cells — normal, healthy ones.

Thomas, 33, had her first sickle cell crisis when she was just 8 months old. Her disease became progressively worse as an adult, particularly after the birth of her daughter. She has spent most of her adult life in and out of hospitals with severe pain and has relied on repeated red blood cell transfusions. Her sickle cell disease also caused bone damage requiring two hip replacements.
“I just want to be at home with my daughter every day and every night,” said Thomas, who depends on family to help care for her daughter during her frequent hospitalizations.
This type of stem cell transplant is only possible for patients who have a healthy sibling who is a compatible donor.
Thomas’ sister was a match and agreed to donate blood stem cells through a process called leukapheresis. Several days prior to leukapheresis, Thomas’ sister was given drugs to increase the number of stem cells released into the bloodstream. Her blood was then processed through a machine that collects white cells, including stem cells. The stem cells were frozen until the transplant.
Last Nov. 23, four bags of frozen stem cells were delivered to the hospital’s blood and marrow transplant unit. One by one, the bags were thawed and hung on an IV pole for infusion into Thomas. The procedure took approximately one hour. Her 13-year-old daughter, Miayatha, was at her bedside.
Six months after the transplant, Thomas is cured of sickle cell disease and no longer requires blood transfusions.
“The donor cells have taken over completely, and blood tests show no sickle cell disease,” said Rondelli, director of the blood and marrow transplant program at UI Hospital. Thomas continues to take medication to prevent rejection of the donor stem cells.
About 25 adults have received a similar chemotherapy-free stem cell transplant for sickle cell disease in recent years at the National Institutes of Health in Bethesda, Md. Approximately 85 percent have been cured.
“Sickle cell disease is devastating — both emotionally and physically,” said Dr. Dennis Levinson, a private rheumatologist in Chicago and clinical associate professor of medicine at UIC, who has taken care of Thomas for the past 16 years. “I’ve been terribly frustrated with Ieshea’s disease over the years, and I’ve cared for many other sickle cell patients who have died.”
Levinson says the stem cell transplant provides new hope for patients who often live day-to-day on painkillers and who are often misunderstood by clinicians. As the former chief of medicine at the now closed Michael Reese Hospital, he said he has cared for many patients with sickle cell anemia and was determined to seek out the best treatment option for Thomas.
Sickle cell disease primarily affects people of African descent. It is an inherited defect of the red blood cells that causes them to be shaped like a crescent, or sickle. These abnormal cells deliver less oxygen to the body’s tissues and can result in severe pain, stroke and organ damage.
Approximately one in every 500 African Americans born in the U.S. has sickle cell disease. The disease affects 80,000 Americans of different ethnic backgrounds.

OLDEST PERSON WITH SICKLE CELL DISEASE CELEBRATES HER 90TH BIRTHDAY

At 90, Asiata Onikoyi-Laguda is believed to be the oldest person with sickle cell disease in the world. She was born in November 1925, the same year as Margaret Thatcher, first female British prime minister and Malcolm X, the African American civil rights activist. At that time, the average life expectancy of children born with sickle cell disorder was just five years, but she has defied the odds to live up to 90.Asiata Onikoyi-Laguda 0
Due to the high level of illiteracy at the time of her birth, she was never diagnosed with sickle cell. She endured years of pain, which kept her away from school till she was 12 years old. Her pain was so severe and frequent that she would beg God to let her die. After primary school, she enrolled at Queens College Lagos, where she met her husband Bolaji Alakija, who later became a doctor.
She did not know she had the sickle cell disease until after she had given birth to five of her six children. Her husband, Dr Alakija, gave her pills including folic acid to take every day, but kept the nature of her illness away from her for a long time
.Asiata Onikoyi-Laguda 4
Dr Alakija had 10 wives and 27 children, when he died, she married Alhaji Laguda, but she never had a child with her second husband. She is the second of four children born from AbdulYekeen Ishola Onikoyi, a prince of the Onikoyi ruling house, and Aishat Alake Onikoyi from Kudeti, Ibadan. In spite of her illness, she has outlived her parents, husbands and siblings except one.

Must Read !  10 Tips for Parents of Kids with Chiari Malformation

According to SCD Journal, in spite of the disease:
– She is under no dietary restrictions whatsoever: eats salt, eggs, meat, sugar, fried food, etc as she likes
– Her blood pressure hovering around 160/90
–  She has performed the holy pilgrimage to Mecca 13 times and Umrah half a dozen times
– She observed the annual 30-day Ramadhan fast until she was over 88 and pressured to discontinue by her children
– She reads Bible, Quran everyday with glasses but moves around without glasses
– She takes public transport in super-c,haotic Lagos
– She gave birth to six children, all by normal delivery. When only son passed away in August 2014 aged 59, she accepted the will of Allah but prayed, “Please let the rest of the children you gave me outlive me.”Asiata Onikoyi-Laguda..

Former Miss Jamaica Universe, 30, Dies After Lifelong Battle With Sickle Cell Anemia

4d33b2a45cec3-1

Shakira Martin, the former Miss Jamaica Universe, has died at age 30.

Martin died Wednesday from “blood clots on both lungs,” according to a Sun-Sentinel report. The blood clots were a result of “complications” from sickle cell anemia, the report states.
According to Martin’s mother Andrea Hall, the beauty queen encouraged others who suffered from the disease to get out of their homes and enjoy the sunshine.

Her mother, Andrea Hall, said that Martin lived by these words: “If you live a dead life, what was the purpose of being alive?”
Hall went on to say that her daughter had suffered from the sickle cell disease since birth but never let her disease define her.
“She was never a slave to the disease, she was very proud, very resilient, she lived her life to the fullest,” said Hall, of Plantation. “Nothing was impossible for her, she never allowed anything to stop her from trying. She was very funny, friendly, loved music, loved Beyonce.”

Is Multiple Sclerosis Caused By Emotional Stress?

Stress is an inevitable part of modern life, but too much of it can be devastating to your health.
Ample research has shown that stress plays a major role in multiple sclerosis, a neuro degenerative disease in which the brain’s communication with the body is blocked, causing symptoms like fatigue, numbness, dizziness and pain. There is no known cure for MS, but learning to deal with stress and emotions in a healthy manner can help limit the symptoms and allow patients to live more normal lives.
In his book, When the Body Says No, Dr. Gabor Maté dives into the stress-disease connection. In one example, Maté tells the story of a MS patient he called Natalie. Over the course of a few months in 1996, her 16-year-old son was discharged from a drug rehab center and her husband was diagnosed with malignant bowel cancer. While she cared for her husband, she suffered from fatigue, dizziness and ringing in her ears, and finally she went in for a checkup and received her MS diagnosis.

GaborMate-bw-med-1

Dr. Gabor Mate

The situation deteriorated. Natalie’s husband was combative and aggressive, and it was after particularly nasty encounters that her symptoms were exacerbated. He went on to have an extra-material affair. All the while, Natalie’s disease got worse and worse.
Her experience was in line with many other people who suffer from multiple sclerosis. One of the earlier studies on the role of stress in MS diagnoses waspublished in the Psychosomatic Medicine journal in 1970. “Many students of this disease have voiced the clinical impression that emotional stress may be somehow implicated in the genesis of MS,” the study said.
Numerous studies followed with similar results. In 1988, a study conducted at the University of Colorado School of Medicine found that MS patients who experienced an extremely stressful life event were 3.7 times more likely to suffer a flare-up from the disease. The following year, the Journal of Neurology, Neurosurgery & Psychiatrypublished a study that found that people were likely to have experienced serious adversity in the six months preceding the first onset of their MS systems. And a review of 20 MS studies from the British Medical Journal found a consistent association between stressful life events and MS exacerbation.
More recently, researchers published a report in European Neurology that found that stressors can be predictors of MS as well. “Significant differences were found between the MS and the control group in their negative emotions and symptoms such as depression, anxiety, obsession, phobia, tense interpersonal relationship and somatization disorder,” the study concluded. “The psychosocial factors are closely associated with MS onset and may play important roles in the development of the disease.”
A large-scale study recently tracked the influence of stress on the lives of 872 adults and found that how people handle the stress plays a role in how long they live in general. The study found people who maintained a positive attitude even in the face of stressful situations showed fewer signs of chronic inflammation.
“Positive emotions, and how they can help people in the event of stress, have really been overlooked,” Nancy Sin, a postdoctoral fellow at Pennsylvania State University,said to the Daily Mail.
However, there is another component that can be overlooked in the onset and exacerbation of multiple sclerosis: It’s not just outside stress alone that precedes the disease. Most of the MS patients that Maté treated also reported a pattern of repressing their own emotions, ignoring anger or annoyance and constantly prioritizing the health or needs of others over their own well-being.
“I need to know when to withdraw from my helping mode,” Natalie told Maté as she continued to care for her abusive husband. “But I just can’t; if someone needs help, I have to do it.”
By repressing her emotions, the doctor suggests, his patient was subjecting her body to chronic stress, probably without even realizing it.
“Chronic stress is activation of the stress mechanisms over long periods of time when a person is exposed to stressors that cannot be escaped either because she does not recognize them or because she has no control over them,” Maté wrote. “We no longer sense what is happening in our bodies and cannot therefore act in self-preserving ways.”
The same scenario shows up in his other patients: Barbara, a psychotherapist with MS whose symptoms started after she housed a sociopathic man, against better judgment, or Véronique, who kept her symptoms secret because she didn’t want to place an emotional burden on anyone else.
The situation can persist, with people giving and giving at the expense of their own well-being, until MS or other disease forces a reckoning. “My body says no to me frequently, and I keep going,” Natalie said. “I don’t learn.”
That’s not to say that people who suffer from MS or other diseases should blame themselves for their misfortune, for not being able to tap into their emotions and understand and prioritize their own needs. That attitude is counterproductive, Maté cautions. “A search for scientific understanding is incompatible with moralizing and judgment,” he wrote. Disease is not a punishment but a physiological reality.
The lesson is that limiting stress or finding healthy ways to process it can be a lifesaver in avoiding multiple sclerosis or alleviating symptoms in people who already have it. One intervention that has shown to be very impactful is mindful meditation, when people sit in silence and allow their minds to untether themselves from any particular thought.
One recent study from the King’s College London found that MS patients who took meditation classes experienced relief from their symptoms and less overall distress. The meditators reported lower pain, fatigue, anxiety, depression and impact of MS than the control group that did not do any mindfulness work.
“The effectiveness of mind-body therapies may lie in their ability to facilitate stress reduction, relaxation, and improvement of mood,” another meditation study noted, “which in turn may affect the degree to which psychosocial factors can negatively affect quality of life.”
Whatever method we find to stay healthy, an honest relationship with ourselves and our stresses seems to be key. “If we gain the ability to look into ourselves with honesty, compassion and with unclouded vision, we can identify the ways we need to take care of ourselves,” Maté wrote. “We can see the areas of the self formerly hidden in the dark.”

by Aaron Kase

9 Things You Should Know About Down Syndrome

October is Down Syndrome Awareness Month. Here are nine things you should know about the condition.
1. Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.
2. Down syndrome is the most commonly occurring chromosomal condition. The Centers for Disease Control in 2011 estimated the frequency of Down syndrome in the U.S. is 1 in 691 live births
3. Down syndrome is named after the English doctor, John Langdon Down, who was the first to categorize the common features of people with the condition.
4. A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
5. People with Down syndrome are significantly predisposed to certain medical conditions including congenital heart defects, sleep apnea, and Alzheimer’s disease. There is also evidence of an increased risk of celiac disease, autism, childhood leukemia, and seizures. It is rare for a person with Down syndrome to have a solid tumor cancer or cardiovascular disease, including heart attack and stroke.
6. Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today. The dramatic increase to 60 years is largely due to the end of the practice of institutionalizing people with Down syndrome.
7. All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
8. Approximately 67% of prenatal diagnoses for Down syndrome result in an abortion, according to estimated pregnancy termination rates from 1995-2011.
9. Mothers of individuals with Down syndrome typically exhibit better psychological well-being profiles in comparison to mothers of individuals with other intellectual and developmental disabilities. There is extensive evidence that mothers of young children with Down syndrome experience lower levels of stress, more extensive and satisfying networks of social support, less pessimism about their children’s future, and they perceive their children to have less difficult temperaments. A major study also found that divorce rates were lower (7.6 percent) for families of children with Down syndrome as compared to 10.8 percent in the population group with non-disabled children and 11.25 percent for families of children with other congenital birth defects.

This Tea Heals Fibromyalgia, Rheumatoid Arthritis, Hashimoto’s, Multiple Sclerosis, And More…

Did you know that down through the centuries thyme has been used for many ailments, from influenza to epileptic seizures? It was often mixed with equal parts of lavender and sprinkled on the floors of churches in the Middle Ages to eliminate any unwanted odors. Long before the discovery of modern medicine, crushed thyme was placed on bandages to promote wound healing and ward off infection.
The volatile essential oils in thyme are loaded with anti-rheumatic, anti-parasitic, anti-septic, anti-viral,  and anti-fungal properties.
If taken on a regular basis it can significantly help to reduce the viral load in the body which makes it very beneficial in dealing with Chronic Fatigue Syndrome, Fibromyalgia, Hashimoto’s Thyroiditis, Rheumatoid Arthritis, Lupus, Vertigo, Tinnitus, and Multiple Sclerosis.
Thyme is packed with vitamins and minerals. It’s rich in potassium, iron and calcium, all of which contribute to blood pressure regulation, proper red blood cell formation and distribution of antioxidants in the body. It is rich in high in B-complex vitamins, vitamin A, C and folic acid. Thyme contains a variety of important bioflavonoids and volatile oils, including thymol. Thymol is an essential oil that has very powerful antioxidant properties.
Thyme has cancer preventive properties; containing terpenoids like rosmarinic and ursolic acids. (Regular consumption of thyme has been shown to increase the amount of DHA (docosahexaenoic acid, an omega-3 fatty acid) in brain, kidney, and heart cell membranes)
Thyme’s essential oils have expectorant and bronchial antispasmodic properties treating…

  • acute and chronic bronchitis
  • sore throats
  • coughs
  • laryngitis
  • asthma
  • treats inflammation of the mouth
  • throat infections
  • prevent gingivitis

DRINK THYME TEA EVERY MORNING TO HELP CURE FIBROMYALGIA, HASHIMOTO’S, RHEUMATOID ARTHRITIS, LUPUS, AND MULTIPLE SCLEROSIS.

HOW TO MAKE THYME TEA

Ingredients:

  • Thyme (dried or a handful of fresh)
  • A covered container for brewing & straining
  • Mug

How to make Thyme Tea, Instructions.
1) Put some herbs in your brewing container – about 1 tsp dried herbs per cup of water.  For fresh herbs, use more.
2) Pour over water that’s just off the boil.
3) Cover and infuse for about 5 minutes.
4) Strain and serve.

31 Problems People With Chiari Malformation Will Understand – Term Life

healthydietnlife-7-easy-solutions-to-awful-period-problems

Chiari malformation is “a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms,” according to Conquer Chiari. Here are 31 problems people with Chiari malformation will definitely understand:
1. Frequently find yourself wondering if you are a hypochondriac, mentally ill or just “lazy.”
2. Always picked last for team sports.
3. Severe headaches which can last for days (the kind that feels like your skull is trying to give birth to your brain through your neck and/or any other hole in your head).
4. Learning to ride a bike or anything else requiring balance for that matter.
5. Being able to sneeze, laugh and/or bend over without getting a headache.
6. The frustration you experience after multiple appointments with multiple doctors who all tell you, “Chiari does not cause pain or any symptoms and is just an incidental finding, not the cause of your symptoms.”
7. Finding a neurosurgeon or any doctor who specializes in Chiari in or near your home state who is also in your insurance network.
8. Learning how to communicate with doctors so you do not come off as “knowing” more than they do, or appearing to be a drug seeker or hypochondriac.
9. Dealing with mixed up brain signals that make you to turn right when you know you need to turn left.  Thank goodness for GPS!
10. Learning brain decompression surgery for Chiari is not a cure, but you still need to have said surgery in order to prevent permanent nerve damage (without a guarantee surgery will help alleviate any of your current symptoms).
11. An over-sensitive nervous system results in frequent “unpleasant tactile experiences.” For example, needing at least ten napkins (ideally wet ones) to deal with sticky fingers at meal time, the weird squishy feel of cotton the balls in medicine bottles give you shivers up your spine and any accidental contact of teeth with tin foil is enough to put you over the edge.
12. Insensitive people (bosses, educational professionals, family members, coworkers, nurses, doctors).
13. Having to learn about the risk vs. benefits of the bovine patch vs. synthetic patch, wondering what your chances will be of actually getting mad cow
disease, and then secretly wondering if you will be prone to unexpected “mooing” and how that will affect your job situation.
14. When you are reading about the symptoms of Chiari and you realize Chiari has “friends” which frequently like to come along to the dysfunctional party that is your body, such as syringomyelia, Ehlers Danlos Syndrome (EDS), dysautonomia, tethered cord syndrome (TCS), congenital scoliosis, Klippel-Feil Syndrome (KFS), Irritable Bowel Syndrome (IBS), to name just a few. Then you wonder to yourself, “Am I just looking for more things to be wrong with me?” And you think to yourself again, “Maybe I really am a hypochondriac?”
15. People who think exercise, nutrition and supplements are the only treatment needed for Chiari.
16. Sudden changes in the weather and the realization you now track barometric pressure and weather forecasts in order to plan you pain
medication and activity level for the week.
17. Having “the spins” without the benefit of a few glasses of wine, beer or other adult beverage.
18. The sheer sense panic that comes over you on a major “brain fog day” when your boss decides to ask you a direct question during a meeting and you have no idea what he is talking about. You can barely form a sentence so you pretend to go into a coughing fit in order to save your job.
19. Never having enough paid time off to cover your sick days (bad symptom days), doctor’s appointments, medical procedures and still be able to take a real vacation.
20. Swallowing a drink of water or bite of food without choking on it all of the time.
21. Trying everything from massage therapy, essential oils, reiki energy therapy, electronic tens units, botox injections, nerve blocks and chiropractic adjustments in an attempt to relieve your chronic neck and back pain so you are able to function like a “neurotypical” human being.
22. Sleep apnea (obstructive and central).
23. Not being able to decide if it is it a hot compress kind of headache or a cold compress kind of headache, so you grab an ice pack from the freezer and also a heating pad and take both to bed with you in order to minimize any necessary movement and exposure to light until the pain passes.
24. Going from chronic fatigue during the day to insomnia that same night.
25. Perfecting the art of tripping over absolutely nothing and saying to others, “Don’t follow me, because I run into walls!” in a joking manner, but also being dead serious.
26. Sitting for long periods of time which requires you to wear compression stockings and/or secretly perform “toe and foot circles” under the conference room table in a effort to keep your feet from falling to sleep and going completely numb.
27. Having to plan for fun by allowing for “respite time” before and after especially busy days or special events.
28. Having a somewhat desperate and innate need for others to understand, just a little bit, of how having Chiari affects you, your family
and your everyday existence on this planet. Then having the sad realization most people will never “get it” unless they experience it first hand.
29. Going from multiple online support groups to zero because you just can’t handle the sadness and drama that seem to go along with rare and chronic illness discussions. Then rejoining said online support groups, because you miss having people in your life who “understand.”
30. Trying to teach others how to say Chiari.  It’s pronounced “key-AR-ee” everyone!
31. Getting people to realize our brains are just too big for our skulls.

Courts Quietly Confirm MMR Vaccine Causes Autism

courts-confirm-mmr-vaccine-causes-autism-600x314

By Mark Wachtler
After decades of passionate debate, parents probably missed the repeated admissions by drug companies and governments alike that vaccines do in fact cause autism. For concerned parents seeking the truth, it’s worth remembering that the exact same people who own the world’s drug companies also own America’s news outlets. Finding propaganda-free information has been difficult, until now.
Dr. Andrew Wakefield
At the center of the fifteen-year controversy is Dr. Andrew Wakefield of Austin, Texas. It was Dr. Wakefield that first publicized the link between stomach disorders and autism, and taking the findings one step further, the link between stomach disorders, autism and the Measles Mumps Rubella (MMR) vaccine.
For that discovery way back in 1996, and a subsequent research paper published by the doctor in 1998, Andrew Wakefield has found himself the victim of a world-wide smear campaign by drug corporations, governments and media companies. And while Dr. Wakefield has been persecuted and prosecuted to the extent of being unable to legally practice medicine because of his discovery, he has instead become a best-selling author, the founder of the Strategic Autism Initiative, and the Director of the Autism Media Channel.
But in recent months, courts, governments and vaccine manufacturers have quietly conceded the fact that the Measles Mumps Rubella (MMR) vaccine most likely does cause autism and stomach diseases. Pharmaceutical companies have even gone so far as to pay out massive monetary awards, totaling in the millions, to the victims in an attempt to compensate them for damages and to buy their silence.
Grassroots outcry
It was a regular reader named Kathleen that brought this ongoing story to our attention here at Whiteout Press. When asked what her connection to the vaccine-autism battle was, the young reader replied, “I just researched it for a school project a while back and then I stayed on top of it, until I couldn’t stand it anymore. I’m not a parent, nor do I belong to any organization – a mere outside observer.”
This reader isn’t alone. The news that vaccines cause autism has spread across the US despite a coordinated media black-out. She takes her concerns one step further explaining, “All I want is to see this information where the public can access it. I’ve looked everywhere, and no one gives this dire Wakefield situation even ONE small mention.” She goes on to give us another motivation for her activism, “In Washington State, where I’m from, vaccines have become mandatory for school children, which is very frightening!”
Landmark rulings
In December 2012, two landmark decisions were announced that confirmed Dr. Wakefield’s original concern that there is a link between the MMR vaccine, autism and stomach disorders. The news went mostly unreported, but independent outlets like The Liberty Beacon finally began publishing the groundbreaking news.
The website wrote last month, ‘In a recently published December 13, 2012 vaccine court ruling, hundreds of thousands of dollars were awarded to Ryan Mojabi, whose parents described how “MMR vaccinations” caused a “severe and debilitating injury to his brain, diagnosed as Autism Spectrum Disorder (‘ASD’).”’
The Liberty Beacon went on to describe the second court ruling that month, as well as similar previous verdicts writing, ‘Later the same month, the government suffered a second major defeat when young Emily Moller from Houston won compensation following vaccine-related brain injury that, once again, involved MMR and resulted in autism. The cases follow similar successful petitions in the Italian and US courts (including Hannah Poling, Bailey Banks, Misty Hyatt, Kienan Freeman, Valentino Bocca, and Julia Grimes) in which the governments conceded or the court ruled that vaccines had caused brain injury. In turn, this injury led to an ASD diagnosis. MMR vaccine was the common denominator in these cases.’
The report echoes the exact same sentiment that our reader conveyed – Dr. Wakefield has had his career and reputation destroyed over the past 15 years, but has just been vindicated. The account reports, ‘While repeated studies from around the world confirmed Wakefield’s bowel disease in autistic children and his position that safety studies of the MMR are inadequate, Dr. Wakefield ’s career has been destroyed by false allegations. Despite this he continues to work tirelessly to help solve the autism catastrophe.’
The article from The Liberty Beacon closes with a direct quote from Dr. Wakefield himself to the independent grassroots outlet, “There can be very little doubt that vaccines can and do cause autism. In these children, the evidence for an adverse reaction involving brain injury following the MMR that progresses to an autism diagnosis is compelling. It’s now a question of the body count. The parents’ story was right all along. Governments must stop playing with words while children continue to be damaged. My hope is that recognition of the intestinal disease in these children will lead to the relief of their suffering. This is long, long overdue.”
Wakefield attacked again
Since the world has slowly become aware of the dangers of the MMR vaccine, parents around the globe have refused to get their children vaccinated. Earlier this year, the UK government singled out Dr. Wakefield and blamed him for the rising number of measles outbreaks in the country. In an April 2013 interview, he responded publicly.
The website TheRefusers.com published both the video, as well as the written transcript, of Dr. Wakefield’s public response. Below are some excerpts of the doctor’s remarks:
“The important thing to say is that back in 1996-1997 I was made aware of children developing autism, regressive autism, following exposure in many cases to the measles mumps rubella vaccine. Such was my concern about the safety of that vaccine that I went back and reviewed every safety study, every pre-licensing study of the MMR vaccine and other measles-containing vaccines before they were put into children and after. And I was appalled with the quality of that science. It really was totally below par and that has been reiterated by other authoritative sources since.
All I could do as a parent was to say, ‘what would I do for my child?’ That was the only honest answer I could give. My position on that has not changed. So, what happened subsequently? At that time the single measles vaccines were available freely on the National Health Service. Otherwise, I would not have suggested that option. So parents, if they were legitimately concerned about the safety of MMR could go and get the single vaccines. Six months later, the British government unilaterally withdrew the importation license for the single vaccines, therefore depriving parents of having these on the NHS; depriving parents who had legitimate concerns about the safety of MMR from a choice; denying them the opportunity to protect their children in the way that they saw fit.
The news shouldn’t be left wing or right wing, conservative or liberal. It should be the news. It should be independent – Whiteout Press
And I was astonished by this and I said to Dr Elizabeth Miller of the Health Protection Agency, ‘why would you do this, if your principal concern is to protect children from serious infectious disease? Why would you remove an option from parents who are legitimately concerned about the safety of MMR?’ And her answer was extraordinary. She said to me, ‘if we allow parents the option of single vaccines, it would destroy our MMR program.’ In other words, her principal concern seemed to be full protection of the MMR program and not protection of children.”
Dr. Wakefield himself reiterates the final conclusion of the courts in various countries, but censored by the world’s media outlets saying:
“Now this question has been answered not by me, but by the courts, by the vaccine courts in Italy and in the United States of America where it appears that many children over the last thirty years have been awarded millions of dollars for the fact that they have been brain-damaged by MMR vaccine and other vaccines and that brain damage has led to autism. That is a fact.”

Difficulties Of Going To Bed With Ehlers-Danlos Syndrome

The Love-Hate Relationship a Person With Ehlers-Danlos Syndrome Has With Their Bed

When you have a chronic illness and you think of comfort, one of the first things you think of is most likely going to be your bed. Rest is very important when dealing with any illness, so why would there be a love-hate relationship with your own bed? It all depends on the illness!

The illness I am facing is Ehlers-Danlos syndrome (EDS). EDS is a chronic condition that has to do with collagen. The collagen in my body is faulty and doesn’t do what it is supposed to and it wreaks havoc. Collagen is a protein found in connective tissue — it’s what holds our bodies together. Our tendons and ligaments do not hold our bodies together very well at all. Ehlers-Danlos patients are prone to chronic subluxations and dislocations and each patient is as different as a fingerprint. I struggle with full-shoulder, clavicle, rib, and hip dislocations and subluxations as well as craniocervical instability (CCI). The running joke in my family when it comes to the CCI is that my head isn’t screwed on straight. That is the best way I can explain CCI to someone who isn’t familiar with medical terminology. I use that joke to lighten the mood so people are most likely to hear me out.

Now that you understand a little better the basics of not only EDS, but my EDS, let me paint you a picture of sorts.

You’ve been going all day long and you have really pushed your body past its limits. You have been looking forward to the moment you can come home and crash and give yourself an actual break. You shower before bed and that takes a good bit of energy out of you, but it had to be done. You go to change into some comfy PJ’s and while you’re trying to put on the bottoms, your hip subluxes just enough for you to really lose your balance and you hit the ground. Bam, you dislocate your shoulder and hit a nerve. No big deal, I’m pretty much used to the pain by now so I just laugh it off as I head for bed.

I go to climb into my bed and as I’m trying to get comfortable, the weight of the blankets is almost too much for me to stand. Pulling myself into the sheets sends my hips and ribs into a panic. One hip subluxes and a couple of ribs dislocate just from the simple task of getting into bed. Now I’m struggling to breathe from the excruciating pain of dislocated ribs. I take a break from trying to get comfortable and just lay there and wait for my body to calm down.

Once everything has calmed down I begin again. I have a lot of pillows because I position them in ways where I’m less likely to dislocate something in my sleep. Usually by pulling one pillow between my legs and wrapping my arms around another pillow. The movement of simply dragging those pillows into position is yet a struggle. This time my shoulders are falling out of the socket and my clavicles are subluxing. I fight through it all even though it feels like I am made of jelly and my bones are moving freely as they wish throughout my body. I fight to get comfortable.

I lay there in what I assume is the position in which am going to fall asleep in, I realize this is not at all comfortable and I need to roll over. The clothes on my body are suffocating me with every move because my joints are too weak to fight the friction that is my pajamas against the sheets and comforter. Finally, I physically fight my way into a comfortable position and doze off for a couple of minutes, only to wake up to a pinched nerve. When your body relaxes, so do the muscles. When my muscles relaxed, my shoulder dislocated and a nerve got hit. Now my entire arm feels like it has been struck by lightning and is now on fire accompanied by a tingling sensation. I’m wide awake wrestling the sheets and clothes trying to get comfortable, yes, again.

This time I find that “sweet spot.” I am thanking the good Lord that the fight is over… and now I have to use the restroom. You have got to be kidding me. I fight the sheets off of me and I climb the mountain that is my pillows to get up and go to the bathroom. I am beyond exhausted at this point. I get back into bed, and you might as well reread everything you just read. This is my life when it comes to sleep. But you see, I rarely, if ever, truly get comfortable. Not just when it comes to sleep, I mean in general. My body is so off balance with the constant subluxations, I always feel like something isn’t quite right. That feeling is always accompanied with pain so that’s why you will find me wiggling and moving to try and put something back in place. It is a constant battle between mind and body.

My Ehlers-Danlos people are the real fighters.

By :Meredith Grigsby

Source:themighty.com